I am so frustrated with insurance companies and state insurance for Jonah. He has been home since November and we HAVE YET TO GET HIM CONSISTENCY WITH HIS WEEKLY THERAPY SESSIONS. This once every now and then visits with an occupational therapist is a joke. He has an early start teacher who works with him every week on all of his goals, and she is amazing, but it is not enough.

Every one of his doctors and specialists agree that he needs occupational, physical, speech (feeding) therapies more than once a week. WHY DOES IT TAKE AN ACT OF GOD TO ACCOMPLISH THIS????!!!!!!! I don’t care how much we have to pay out of pocket, if he needs it, we will figure out a way.

Every time I think we have success at getting him in, the insurance or medi-cal or the hospital or the doctor’s office or SOMEONE screws it all up some how and now here we are once again back at square one.

Twice we have gotten referrals and authorizations to the wrong places.

Over and over again things are getting miscommunicated and his prescriptions for therapy are getting lost and every place is acting like they don’t know what’s going on and blaming everyone else.

I’m supposed to be practicing this whole patience thing but DAMMIT IT ALL TO HELL I AM GETTING SO FRUSTRATED AND PISSED OFF AND LOSING EVERY OUNCE OF PATIENCE I HAVE WITH THESE COMPANIES.

Skysiydisulf!!!!!!

GGGGRRRRRR!!!!

My 6 year old is a hoarder of money.

This morning I noticed he had quite the collection in his piggy banks when he tried to get 2 dollars out of his bank and got frustrated when he realized he only had 5s 10s and 20s.

He hates spending his money, and I’m pretty sure he has more than us by this point.

He doesn’t get this trait from me.

So we just found a new nurse to work the two nights our other nurse doesn’t come in. She oriented and trained with our other nurse on Wednesday, everything was great, she loved Jonah, we were looking forward to her starting, etc…she started her first shift last night.

At 5:00 this morning, she wakes me up and says she has to go. I asked her if everything is okay and if there was a problem, and she tells me, “I don’t know..is there a problem? You tell me.” Having just woken up, I’m completely confused by her response.

She goes on saying that with all the screaming and the gate slamming it would be best for her to leave. She said for the past 30-45 minutes, she’s been listening to the security gate open and slam shut and a woman screaming. I’ve been in my bed asleep all night, as have the rest of my family. My dogs were also asleep which leads me to believe it was something only she was hearing.

She said every time she walked out of Jonah’s room the slamming and screaming would stop. She was visibly scared and uncomfortable and said it would be best for her to leave because someone doesn’t want her here. She said she doesn’t know if she’s coming back and that maybe I shouldn’t want her back if someone doesn’t want her here…????????? I’m so dumb founded. Both my husband and I.

I feel awful that she experienced something that scared her so bad that she doesn’t want to come back to my house.

She said she was calling the office. I doubt she will show up tonight.

I still don’t have any explanation.

All that bitching I did about hardly raising any money at the yard sale the other day was for nothing.

Because of us hardly making 50 bucks on Saturday, we decided to take pictures of some of our stuff and post it on every yard sale group in our community. I’ve already raised around 200 dollars to put towards our Ronald McDonald House fund, thanks to the wood burning stove we sold. 

We are almost half way to our goal. We also decided to give some of the money raised to the music therapy program at the children’s hospital. It was through the music therapy program that we were able to really bond and connect with Jonah since we couldn’t hold him for the longest time.

Several people have been asking where they can help donate, so a friend of mine decided to put up a pledgie to help us reach our goal. If you would like to give anything, even a dollar, you can do so here.

Again, 100% of everything we make from the pledgie, yard sales, and other fundraising we have been doing is going directly to the Ronald McDonald House and the music therapy program. We are excited to give back, and even if you can’t give any money, all of your guys’ support, encouragement, good thoughts, prayers, gifts we’ve gotten in the mail, etc…means the world to us. We love all of you. Thanks friends.

http://pledgie.com/campaigns/19876

So far we have only made 30 bucks today.

Hardly anyone has come out despite all the advertising we have been doing.

We had signs up all down the street leading to the yard sale and some ass hat took them down. I’m assuming it was the other people having yard sales in the neighborhood.

Feeling so discouraged, upset, and disappointed right now.

If nobody else comes and donates or buys something today, I won’t even be close to the goal that I had.

At least I have raised some money.